09/21/09 - heard from CAH. They have written to Kaz last week to see about a possible travel date and they were going to check on it. As soon as they hear anything, they will let us know.

Today we had a conference call with Dr. Schulte from the Childrens Hospital Cleveland Clinic at 3:00. Email communication while in Kaz. Send pictures and video right away. Once medical records are translated - type up and send. She talked to us about what to look for, what we are looking at, good vs bad signs to look for, all observations should be sent. We will touch base with her once we know what our travel date is.